|
[Date Prev][Date Next]
[Chronological]
[Thread]
[Top]
[Dysphagia] chylothorax
"NewVisions.com" came up with another site, so I searched some and
found this instead: http://www.new-vis.com/
Jill Zweier
On Jul 8, 2005, at 11:44 AM, pressmah@sjhmc.org wrote:
> Amy you certainly have a brave little niece who is pushing along.
> Yes, she
> must be medically stable before you can consider PO feeding. This may
> be a
> long term goal. If it is, we often change to a gastrostomy tube. The
> NG
> tube is uncomfortable and increases oral aversion. It sounds like her
> therapist is working on providing some positive oral experiences. Her
> parents should help with this by bringing a variety of toys to her
> mouth so
> that she can experience many different textures and positive oral
> experiences. It is important to watch her closely and to withdraw the
> item
> if she shows any signs of discomfort. Suzanne Evans Morris has worked
> extensively in this area for many years. You can go to her website at
> NewVisions.com for many ideas and can buy her books there. Good luck
> to
> this little girl and her family. Hilda Pressman MA, CCC SLP BRS-S
>
> -----Original Message-----
> From: amy beyer [mailto:amy_beyer@yahoo.com]
> Sent: Tuesday, July 05, 2005 9:29 PM
> To: dysphagia@b9.com; jill georges; pat bates; amy_beyer@yahoo.com;
> rebecca moffatt
> Subject: [Dysphagia] chylothorax
>
>
> hi there. i have only worked with geriatrics, not peds and certainly
> not in
> the nicu. my niecewas born in late jan and is five months old. she is
> still
> in the nicu (hasnt come home yet). she has chylothorax and a leak in
> her
> thoracic duct. her thoracic duct remains unpaired after four attempts
> at
> surgery.her doctor is hoping for a self-correction. she was on a vent
> for
> two months but has been off of it since april. . she has a tpn and an
> ng
> tube but is only being fed 17cc of formula (every hour)
> (pregestimil)at this
> point. (40cc = 1 oz for comparison). this is done through continuous
> feed
> (ng tube), as her lymphatic system cannot tolerate bolus feeds at this
> point. they are hoping to increase her formula more (raise 1 cc each
> day,
> given she tolerates it well) but each time they have done this in the
> past,
> her body cannot tolerate the extra fluid and she regresses (this is
> the most
> she has been on in the past month or so). she has significant oral
> aversion
> and a strong gag r!
> eflex to
> any oral stim. she has not had continuous slp, pt or ot services
> until now
> b/c she has been on such a rollercoaster with feeds (being able to
> tolerate,
> etc) and had chest tubes in and out for so long. each time the chest
> tubes
> have been in (to drain excess fluid), her doc dc's services. in the
> past few
> weeks, she has had more therapy (st and pt at least 3x a week). speech
> is
> working with oral aversion (using lollipops, flavored lipgloss etc).
> does
> anyone have any experience with a case like this and do you know
> prognosis
> re: po, reducing oral aversion, connection to speech development, etc?
> a
> doctor who is not their regular doctor said some babies NEVER eat (po)
> and
> her (main doctor has NOT said that at all. i think she will need more
> therapy (speech and other) as she starts to tolerate feeds, etc and
> that she
> will benefit tremendously from it. the main goal is to get her with po
> feeds
> that she can tolerate without having regression she has in the past.
> having
> tpn in long t!
> erm is a
> risk to liver, i believe. so they want to get her off that as soon as
> she
> can. anyone have any insight or know where i can fid some other
> resources to
> help? also, are there any parent dysphagia boards for pediatrics i can
> direct her to? thanks so much. any tips, insight, advice, etc would be
> most
> appreciated.
>
>
>
> Amy M. Beyer
> www.thebeyers.com
> _______________________________________________
> Dysphagia mailing list
> Dysphagia@b9.com
> http://lists.b9.com/mailman/listinfo/dysphagia
> _______________________________________________
> Dysphagia mailing list
> Dysphagia@b9.com
> http://lists.b9.com/mailman/listinfo/dysphagia
>
|
|